Congenital Heart Defect Awareness Week

Two months ago today we lost our sweet daughter Sadie. Sadie had a congenital heart defect and was with us only 23 days. Her death was sudden, traumatic and just so unfair. Her doctors at Lurie Children's Hospital are shocked by her death, as her condition, while very serious, is not one that typically causes death if detected early. Today is also the first day of Congenital Heart Defect Awareness Week. In remembrance of our daughter and acknowledgment of CHD Awareness Week, I would like to share some of Sadie’s story and a little bit about what I learned during her short life through a series of daily posts over the next seven days. In doing so, I hope not only to do my part to raise awareness about congenital heart defects, but also to remember my beautiful daughter, who I honestly still cannot believe is no longer here.